The Chairman Of Palmerston Residents Association Terry Hoey Says Why do we not screen for XLP,HLH,

Hi everyone would you think in this photo that I could have XLP,HLH,EBV, that's the problem you don't know Because it is one of my genes that is wrong and the problem is not everyone in the world knows what XLP,HLH,EBV,is either I don't want to be cheeky DO YOU KNOW WHAT THEY STAND FOR I don't think so because this gene has only been found out in 1997 and this gene is very smart as it takes on the face of different illness mine started with Glandular Fever that would not go away.

PLEASE HELP ME AND THE CAVAN TOMMY HOEY TRUST GET THIS WORD OUT AND HELP US TO SAVE LIVES IN OUR YOUNG CHILDREN SO PLEASE HELP LOBBY OUR MLAS FOR SCREENING OF THIS GENE


 

Donate to Cheque's Only Please

The Cavan Tommy Hoey Trust (IRL) C/o 86 Palmerston Road Sydenham Belfast  Northern Ireland BT4 1QD

The Cavan Tommy Hoey Trust (Cornwall) 6 Springwell Lovelane Bodmin PL31 2QP

Contact Northern Ireland Terry Hoey       Contact Cornwall Jen Gendall 

 

 

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This page contains a single entry by Terry Hoey published on January 5, 2009 12:10 PM.

Palmerston Residents Association Chairman Terry Hoey Thanks Everyone For Their Hard Work In 2008 was the previous entry in this blog.

Palmerston Residents Association Chairman Terry Hoey speaks to Sir Reg Empey about his fears of XLP HLH EBV is the next entry in this blog.

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